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malada: typing (typing)
Wednesday, March 4th, 2026 05:47 pm
Wednesday is my usual day for light box treatment. It's UVB and with weekly visits over a period of several months my psoriasis mostly cleared and stayed clear.

My scalp, no such luck. It scabbed and oozed and blistered and 60 percent of my hair is gone. Two types of shampoo, two courses of antibiotics - no help. I wear scarves when I go out because the sight of my scalp makes women faint, grown men cry and dogs to howl.

Yes it hurts and itches like hell. Three biopsies showed nothing scary.

So they passed me to a more experienced partner. She walked into the examination room and asked what I was here for.

I took off my scarf. Her eyes widened in horror.

After a quick overview of my treatment she excused herself for several minutes. Several long minutes. She came back with another nurse and gave me a good looking over. She took two more biopsies - not of my scalp - but other odd areas - put me on a different antibiotic and a steroid. She expressed so much concern about my condition she even gave me a little hug as she left.

I'd post pictures of my scalp but I'm afraid they're too gruesome.

I'm hoping to finally get some traction on this.
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malada: Canadian flag text I stand with Canada (Default)
Thursday, October 31st, 2024 07:33 am
I had UVB light therapy over a decade ago. My then dermatologist decided to up and retire with little warning and for years no one offered it locally.

I found one that did.

They popped me in a closet sized box lighted with 8 foot long UVB lights and cooked me for 45 seconds. Within 10 seconds I felt a smile come to my face and that smile stayed there for over an hour and a half. Yes, light therapy is good for mood disorders too.

More please!
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malada: Canadian flag text I stand with Canada (Default)
Tuesday, October 29th, 2024 07:23 am
They did a biopsy of one of my psoriasis patches and the results suggest I have a drug interaction, not psoriasis.

Really? What drug have I been taking since I was 20? You know... 49 years ago? None of course! They did ask for the newest eruption so I am wondering if my high blood pressure meds can be blame for *some* of my issues. The dry, scaly, peeling, oozing, red itchy patches are all over my body and have gotten worse as I've gotten older. So... maybe not helping?

I got some samples (new creams - oh boy!) and I start UVB light therapy tomorrow! YES! I step into the Big Box of UVB light bulbs and they cook me for 30 seconds (to start). I had this treatment decades ago and it cleared me completely... then the doctor retired and *no one* in the area offered it. I'm looking forward to this.
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malada: Canadian flag text I stand with Canada (Default)
Friday, October 18th, 2024 11:58 am
Last week my dermatologist took a biopsy just to double check that my psoriasis really is psoriasis and not some other flaking, red, itchy, scaly skin disorder. They were gentle and careful and it hardly hurt at all. I was nervous about it because hurts can push me into a seizure.

Today they'll pull the stitches and maybe have a diagnosis from the biopsy. My psoriasis seems to be resistant to almost all medications they've tried. Decades ago I had full body light therapy which cleared me completely... but the doctor didn't like using it. He retired abruptly and full body light therapy has been hard to find locally.

Maybe they'll have some answers soon. Meanwhile, I've applied to another dermatologist who might have light therapy. We'll see.
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